Swallow up all your tears...

Kinda had a 'hit the VERY bottom' moment. So this is advice to myself... I understand we all have our Gethesemne's. I read this today too, it is so comforting:Mountains to Climb HERE: (It's all about being 'polished'. Oh I need to remember that...)
 Hope that this thought can comfort some one else too. HUGS and TEARS

Another Update:

Mr. Clark had his surgery today to remove his P.D Catheter in his stomach. His stomach looks like he just had a C section. Poor guy. We are in recovery mode again. All is well(except he is sick of pain). After 5 surgeries is 6 weeks... He is excited to be one step closer to being able to shower again!

This is the final phase to our FAREWELL to Fionia.

Here is our top 10 reasons to rejoice:

1- No more sugar HIGHS. Fionia was just to sweet for Mr. C's system.

2- Less Infections--YAY


3- No more Tally-  Tubing everywhere!

4- No more tied to a line for 10 hrs. 

BYE BYE FIONIA

Take those supplies AWAY!

5- YES, Less supplies (Fionia was a high maintenance machine)

6- No more Beeping all night when Fionia thought our eyes were closed

7- Goodbye to feeling BAD. We just didn't know how BAD it was until he started with nx stage hemo dialysis.  OH SO MUCH BETTER!


8-We won't miss Peritonitis.  That heart dropping sign of a cloudy bag.

9- No more emergency calls to the help line because Fionia was so temperamental.

10- No more watching the POTASSIUM as close. For Mr. Clark this means he can have potatoes and tomatoes.


FAREWELL FIONIA!

Thankful Tuesday: Minimal issues and Sweet Nap time

Our new schedule with dialysis is going great.

EXCEPT...

Staying up til midnight thirty is wearing me out.

Mr. Clark can sleep, but...

I get to take stats every thirty minutes (so Thankful this is only for 4 hrs instead of 9 hrs!)

SOoooooooooooo

When I get home from my day job, I try to take a power nap... To prepare for the night job!!!!

So THANKFUL for extra ZZZZzzzzzzzzzzzzzssss and a good routine.

Now my body insists on NAP TIME!
Oh well, minimal issues! For this we are THANKFUL!  XO

Lengthy Latest:

Kinda explains our week! So here is a detailed update:

1- Started Home Nx Stage- (blood dialysis) I can only say that  my blood pressure can sky rocket watching Mr. Clark's life (blood) in my hands - literally. 
Only lost 2 pints of blood so far...
SERIOUSLY?
I've been told its ok...
blood squirting etc... Oh ya
A new respect for nurses/e.m.t's!
We won't talk about if he gets air in his blood...
 Wooh eeeeh!
STRESS, OH STRESS


It has been terrifying to begin with but we are getting the hang of it.
We are enjoying having only 3-4 hrs instead of all night. 

Mr. Clark is still getting 8-10 hrs of work a day in.

and he is feeling GREAT!
He is an incredible person with an incredible job with an incredible team to work with!


2- His surgery to remove his P.D Catheter will be on April 27th
(NOT looking forward to another hospital stay but once again it is narrowing down to our new normal.

AND THE LATEST...

3- A little pin poke/callus on the side of his foot sent us flooding with memories of when he nearly lost his toe/foot in '08, so we took this very serious. Our Doctor sent him to a specialist who sent him for another fitting of special shoes that he's been wearing for years. And for an ultra sound of Mr. C's feet/legs. He has 50% blockage in his veins. They suggested getting his veins router rooted... or even stents put in his legs.

YES, WE SORTA FELL APART
6 surgeries in 6 weeks seemed a bit overwhelming.



And if this surgery happens? We have been worried about  being put on hold with the transplant lists again.
&
yet again
You always think of the pain and recovery.
It took prayer and much meditation to come to
peace and realization that this

'WOULD SAVE HIS FEET'
duh!
After all of this WORRY

We saw the surgeon today. He said that this is surgery isn't too painful.

"IT WILL BE OK"
our Sons response and reminder!

and after today's Dr. appt. with the surgeon

he will try more meds to see if it helps and give it 6 weeks. Then we will go from there.

THE MORAL TO THIS STORY:

Don't over think things--
(my life story- always gotta have a plan A,B,C)
I am convinced that's how I 'deal'  
ahhhhhhhhh

Indeed

GOOD THINGS FALL APART SO 

BETTER THINGS  CAN FALL TOGETHER.

THINGS WILL WORK OUT!

We heard these words at our Dr. appointments today:

"One more thing you can try"
&
"Things are going well."

Some positive news.

FOR THIS WE ARE THANKFUL!

THANKFUL THURSDAY: Proud Picture Overload!!

This is the third time we've been with our lil Daxton. See how he is growing!  a little secret? the dishes on top of the piano so that lil monkey boy could get in the china cupboard all he wanted. Guess what? After we moved them he never opened the cupboard again!

We had a WONDERFUL time with the CUTIE CAKES! A wonderful distraction from our new routine!

We colored Eggs

Celebrated Easter

 and the  Easter Bunny even left tracks, which Lil' Daxton ate!


In between the fun we put our Son on a plane to go home. So blessed that he could come no matter how short the visit. Tears...

THEN:

We laughed and laughed at Daxton playing

Our favorite part of the ZOO
the GORILLAS ARE AWESOME!

This Lion wanted Daxton for lunch. In a quick second he leaped at the glass to nab him.

Cutie Cakes with their Mom!

THEN:

Mowing the Lawn with Pappa

and playing!

THEN:

a 3 hour trip to Kansas City

To Tour The Open House of the Kansas City Temple

AND FINALLY...

Goodbyes :(

With a special reminder of how much love we get from our Cutie Cakes!

Thankful Thursday: Looking Forward

WE ARE LOOKING FORWARD TO 3 LIL CUTIE CAKES driving a long, long distance to come and see us for EASTER! Pictures to come!

FOR THIS WE ARE THANKFUL

Thankful Tuesday: Introducing BIG RED!

Oh My Broken Back! Yes I moved all of "Fionia's" boxes to the garage to prepare for "BIG RED'S" supplies

We are officially moving 'Fionia the Filter out! This high maintenance machine will be gone along with all these supplies after April 18th .

IN THE MEAN TIME...

INTRODUCING---

"BIG RED"

BIG RED is the machine - The ugly chair comes with it! We couldn't pic it's color!

This is the most part of BIG REDS SUPPLIES
definitely not as many as Fionia the Filter

We are advancing to nx stage which is hemo dialysis at home.

'BIG RED'  has moved in and will be up and running by Thursday maybe Friday.

We have gotten our wings and have graduated from our training.

SHEW!!!!

We will be Glad to be HOME!

For this we are THANKFUL!!!

Our Personal Spiritual Feast

I heard today that members of the Church of Jesus Christ view this weekend as our personal HOLIDAY! I like that! Because it is such a FEAST. It isn't just for members but ALL people.  I can tell you that what I heard this morning, yesterday and today gives us (Mr. Clark and I and our Family) added strength to continue doing what we are doing. What ever it takes. We all, with our struggles and adversity can gain hope in Christ that he is aware of our difficulties and he is here for us. So much peace and comfort no matter what the battle. Also, Death is a part of life and it is just progression into eternity.  I hope that you'll have the desire to here the words that I listened to that give us such hope.  BLESSINGS TO YOU ALL  What is General Conference HERE: