Saturday Song here:
I haven't had a moment to blog.
All week I've thought about how I've missed 2 weeks of THANKFUL posts. My only comment is ---Ms. Fiona the Filter has consumed every extra ounce of our ENERGY! It sounds silly to say because it is such an easy process. We are working as a team . It takes us both to lighten the burden. We try to rotate sleeping... and SHhhhhhhhhhhhh When Mr. C can't get the machine to work he does the cutest dance to get the fluid moving!!!! It makes me roll on the floor laughing!
Although Mr. C is doing OK, he still has some tweaking of the dialysis machine to get feeling better. His numbers still aren't looking great although his potassium level is PERFECT! First time in 2 years! Did I say that eating an overload of PROTEIN is tough...
He spent Friday with the nurse and testing AGAIN.
On an up note, we were able to sleep 'all night' last night. Much needed rest without any interruptions from the beeping sound of Ms. Fiona. Shew, it sure felt good. It has been a bit confining for Mr. C. Who made the comment Thursday, " I feel almost claustrophobic " I can't blame him. He walks in the door from a long day at work, only to hear Fiona getting ready to plug in, every evening. We are hoping even more for a transplant so that this isn't for the rest of our lives??? WOW. We sure have compassion for people that have went through so much more with dialysis. He is almost confined for 11 hours at night. (Which we are appreciative that it can be at night )sacrificing a few zzzzzzzzzz's to have some normalcy in the day.
As I layed sleeping with my head to the foot of the bed one night clearing the alarms of Ms. Fiona. I felt a sweet kiss on my cheek. I heard these words, " oh thankyou sweetheart. Now get up in bed I will take over now " Oh he makes it all worth it! I love this guy!!!!!!!!
About our appointment with the Kansas University Transplant Team: Mr. Clark did CT Scans, X-rays,and 27 viles of blood for tests. What an AMAZING place. So organized and prompt. WOW! We met with the Transplant Surgeon, and 5 others on the transplant team. We have learned some valuable things. One of them being what the process is to receive organs. It was humbling to hear the process that it takes to get an organ. It was tearful. We hope to get a live donor. We will find out what more we have to do or if we will qualify to get on the list next week. If we get on the list we will have to serve our time. After listing for 12 months, our name will move to the top.
So for now I'll have to take some time to do my Thankful post randomly. I'm looking forward to the summer break from school. WAIT A MINUTE we haven't had spring yet. BRRRRRRRrrrrrrrr it's cold in Kansas! JUST 3 weeks away to get back to blogging!
1 month ago
1 comment:
Very hard - that thing called sleep deprived! As new parents all we can say is we feel your pain! We pray for you guys every day and will start including in our prayers that you can get some good sleep inspite of the beeps!
We love you!
Heather and Robert and Hadley (who always manages to get the sleep she needs) :)
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